What you need to know about Keratoconus…
This is a blinding condition affecting 1 in every 45 Maori and Pacifica children, many Asian and European children too. A 30 minute treatment stops it progressing but can not reverse the damage done..
The Vision Thief: How Undiagnosed Keratoconus in Children Can Silently Steal Their Vision – and Their Future
Why Tama’s dream of becoming a fireman has been taken away from him… and our mission that this should never happen to any other child.
Listen to real life experiences from others with keratoconus, from their first symptoms through to being treated for the condition. High quality information at no cost at all – be informed, learn from others, stay up to date.
Cone.org whānau – Ensuring our children have good vison for their future
- Watch short videos of people living with this condition.
- Access all of our latest blog posts.
- We send you a quarterly update on how the screening program is running and results of the screening.
stay updated
Video stories of people living with the disease & updates on screening
Free membership to Cone.org whānau
Does your child have this disease?
As parents, doctors and educators, we prioritize children’s academic success, physical health, and emotional well-being. Yet, one critical aspect often slips through the cracks: their vision.
For many students, vision problems like keratoconus—a progressive thinning of the cornea—may go unnoticed, quietly impacting their ability to learn and participate fully in life.
This is why we must screen them in school
What is Keratoconus? The no nonsense answer…
What is the Cone Screening program?
What next if your child is found to have possible keratoconus?
Because We Can
How do we help?
Cone.org is a screening program we run from our not-for-profit company. We are run only by donations and with volunteers. We aim to offer your children the ability to maintain their independence through maintaing their sight. We love what we do
Supported by minister of international trade NZ
Mr Todd Mclay MP for Rotorua is an enthusiastic supporter of this program
Create lasting change
Identifying and treating your children will stop the progression of the loss of vision. Helping them concentrate in school and achieve their full potential.
Give with confidence
Waiting for the final steps for full charity registration.
Medical expertise
We have experienced, specialist volunteers from the Rotorua Eye Clinic offering their expertise in running the screening program, performing the screening test and following up those who may have the disease.
Let us help you and your whano
Understanding Keratoconus: Causes, Risks, and Management.
Every child deserves the chance to see a bright future—literally and figuratively. Let’s ensure their vision isn’t the one thing holding them back.
9
Volunteers offering their professional skills and services
7,300+
Children needing screening every year in Rotorua alone
1 in 45
Maori children have this disease
testimonials
Real people.
Real transformation
We are in the process of interviewing some of our customers and we will bring you these stories soon. Please sign up for Free Membership to get updated stories from people who have been on their keratoconus journey.
Join Us
Sign up for Free Membership called Cone.org whānau.
Get regular updates of stories of those who have this disease, their journey to a better future where their disease is now stable.
Join Us
Step forward, serve
humanity, reach
out & help
Donate your time to help our children
School
Help manage students during a screening day.
Help for Education
Help spread the word and awareness of this disease to others in your school community.
Featured Campaign
Learn more detail on keratoconus.
We cover what keratoconus is, how it has affected some of my patients and in-depth understanding of the screening program and so much more. This is a disease that can run in families and there are a number of associated conditions that make it more likely that your child may get keratoconus.
the Cone.org Way
No child left behind, they all deserve a future with good vision.
Our Mission
We won’t stop until every
child in New Zealand has been screened
We are starting in Rotorua but have a vision for all of New Zealand to be regularly screened for this disease. Sign up for our free membership to stay up to date on our progress, video highlights of people with this condition and other resources.